ALZHEIMER'S
DISEASE
Alzheimer's
Association - http://www.alz.org
The
Alzheimer's Association, a national voluntary health organization, provides
information and services to people
with Alzheimer's, caregivers, researchers, physicians, and health care professionals.
www.ALZCT.org
The Connecticut Alzheimers Association, serving the needs of the population of CT.
ElderLaw.net
Sharinglaw.net website
Alzheimer
Forum - http://www.alzforum.org
A compendium of information for
researchers, physicians and the general public, the site includes news,
articles,
discussion forums, interviews,
diagnostic and treatment guide, directory of drugs and clinical trials, and
research
advances. It also provides access to
such unique tools as directories of genetic mutations, antibodies, patents,
and conferences.
ADEAR
(Alzheimer's Disease Education and Referral Center) - http://www.alzheimers.org
ADEAR maintains information on
Alzheimer's disease research, diagnosis, treatment, drugs, and clinical trials,
and
Federal Government programs and
resources.
Heath
Information on AD from the National Library of Medicine -
http://www.nlm.nih.gov/medlineplus/alzheimersdisease.html
An all-in-one search site, this page
provides links to recent news items, symptoms and diagnosis, research,
statistics, clinical trials, coping
issues and other resources.
Alzheimer's
Disease Brain - http://www.pueblo.gsa.gov/cic_text/health/alzheim/brain.gif
The site
illustrates degenerative neurons in the brain and the areas responsible for
motor, vision, sensory, speech
and memory functions.
Alzheimer's
Disease Process in RealMedia - http://www.alzheimers.org/rmedia/menu.htm
In an 80-second film clip the viewer
can learn about neurons, neurotransmitters, tangles and plaques, and the
death of nerve cells.
Normal
and Alzheimer Brain Comparison - http://www.ALZBRAIN.org/gallery.htm
Viewable are lateral and overhead
scans of a normal brain and an Alzheimer brain with the areas of memory,
understanding, hearing, speech,
temper, personality, and brain atrophy labeled.
CAREGIVING
Caregiver's
Handbook - http://www.biostat.wustl.edu/ALZHEIMER/care.html
Although
this handbook is not specific to Alzheimer's, it is easily applicable to AD,
provides good coverage on care
for the caregiver and is copyright
free - making it an excellent training tool.
Caregiving
Tips from the Perspective of the Person with Dementia -
http://www.alznsw.asn.au/library/tips.htm
An Australian writer who has
Alzheimer's disease provides practical advice on how to handle 20 caregiving
situations.
“How to" Caregiving Skills - http://www.webofcare.com
Short
animations demonstrate home safety, infection control, personal care,
transfers, incontinence care and more
at www.webofcare.com.
To find the animations, follow the links "Alzheimer's/Dementia", and
"Caregiving Skills."
If you
are accessing the link live, click
Mayo
Clinic Alzheimer's Disease Center - http://www.mayoclinic.com/home?id=3.1.2
The Mayo Clinic site contains
articles on driving, caregiving tips, nutrition, communication, stress
management,
depression, interactive caregiver
stress tools and a free e-mail update service.
Planning
for Long-term Care
- http://www.alzheimers.orci/pubs/longterm.html
This web
site from the National Institute on Aging explores the options for long term
care, with articles on planning
ahead, making the right choice, and
making a smooth transition.
Predicting Time in the Nursing Home - http://cpmcnet.columbia.edu/dept/sergievsky/predictor.html
Columbia University has developed a tool to help predict how long it might be
until a person with Alzheimer's requires nursing home care. See the home page
for their methodology.
Rush
Manual for Caregivers from Rush Alzheimer's Disease Center -
http://www.rush.edu/patients/radc/pdfs
Written for family caregivers the
manual contains 30 chapters on stages, treatment, communication, intimacy,
coping, spiritual needs, legal
matters, traveling, driving, exercise, hygiene, incontinence, and nutrition and
more.
Viewers can download the manual in
PDF for free; click Caregiver's Manual.pdf.
The
Alzheimer's Page from Washington University in St. Louis - http://www.biostat.wustl.edu/alzheimer
This site links aging and dementia sites and contains the ALZHEIMER discussion group (an on-line support group for family caregivers and professionals).
Alzheimer
Disease International (ADI) - http://www.alz.co.uk
The ADI web site links to
fifty-seven Alzheimer's disease associations throughout the world, most in
developing
countries. It lists information
about AD (for the person with AD and the caregiver - in English and in 25+
languages.) It also contains
information on the global impact of Alzheimer's as well as other activities of
ADI.
ClinicalTrials.gov - http://clinicaltrials.gov
Persons
with Alzheimer's disease, family members and members of the public can find
current trials and research.
The searchable database provides
information on the name of the study, the purpose, eligibility, and contact
information. Additionally the site
indicates whether the study is recruiting and includes citations from published
works.
Manual
of Geriatrics - http://www.merck.com/pubs/mm_geriatrics
This Internet version of the manual
is intended to help both families and professionals find descriptions and treatment
information on conditions prevalent in the elderly. Nineteen sections,
averaging ten chapters each cover a wide range of disciplines and geriatric
diseases.
The official site of the American
Association of Retired Persons(AARP). Contains articles and resources on caregiving, health, legal
legislative and social issues for people over 50.
Life Answers. A series of online articles
sponsored by AARP. Topics include caregiving, driving safety, legal solutions,
grief and loss, independence and housing.
http://aarp.fathom.com/course/core.jhtml
A series of 6 free on-line seminars
sponsored by AARP. Topics include: Reverse mortgages, managed care, exercise,
caring for aging parents and assisted living.
http://www.thehartford.com/alzheimers/index.html
Alzheimers, Dementia and Driving. This site, developed by the
Hartford Insurance Company helps families cope with the dilemma of persuading a
family member with Alzheimers to stop driving.
http://www.ama-assn.org/sci-pubs/amnews/pick_01/hlsa0917.htm
An online article by the American
Medical Association about the health consequences of caregiving.
http://www.ama-assn.org/ama/pub/category/4642.html
A caregiver self assessment tool developed by the American
Medical Association to monitor caregiver stress levels.
http://www.thoushalthonor.org/
A website dedicated to "And
Thou Shalt Honor" a PBS program airing Oct. 2002. Contains
links and resources for caregivers.
http://www.caregiving.org/content/fcrc.html
The AXA Foundation Family Care
Resource Connection categorizes caregiving resources by topical area.
Topics include hands-on caregiving, community services, housing and living
arrangements.
http://www.aoa.dhhs.eov/wecare/default.htm
Because We Care: A Guide for People
Who Care. An online
resource guide from The Administration on Aging for the growing number of
Americans who are caring for an older family member, adult child with
disabilities, or older friend. This Guide provides information and a
range of suggestions to make caregiving easier and more successful.
http://www.zarcrom.com/users/yeartorem/bkreviews.html
Reviews of books about Alzheimers
and caregiving.
A website from the magazine, Today's
Caregiver. Provides online caregiver articles and magazine information.
Caregiving.com. Online articles on caregiver
issues. Includes stages in caregiving, a caregiver support center, frequently
asked questions and caregiver stories.
The Internet home of the National
Family Caregivers Association (NFCA). NFCA is a grass roots organization
created to educate, support, empower and speak up for the millions of
Americans who care for chronically ill, aged or disabled loved ones. Provides
services such as a bereavement kit, prescription drug discounts and a caregiver
newsletter.
National Alliance for Caregiving provides caregiver tips, links and
book suggestions.
National Association of Professional
Geriatric Care Managers. Describes the role of the care manager and allows users to search for a
local certified geriatric care manager.
http://www.cin-ncoa.org/intro.html
National Council on Aging Consumer
Information Network provides
short education programs on topics such as: Medicare, Alzheimers, safety
relationships and other issues of interest to seniors.
http://CTAssistedLiving.com
http://Assisted-Living-Directory.com
Full listing of Assisted Living Facilities in CT
Assisted Living Directory includes a *free service* for facilities to
list their information. The goal of the site has been to make online advertising accessible to all assisted
living facilities large and small. Includes google mapping capability to Assisted Living pages.
http://www.nursinghomeinfo.com/
Nursing Home Info provides information about choosing
a nursing home, listings of facilities and a needs assessment tool.
AgeNet Solutions for Better Aging provides articles on caregiving,
housing, legal, insurance, health, home and drugs. Also provides online tools
such as eldercare checklist and home safety checklist.
AGS Foundation for Health and Aging provides consumer oriented research
from the American Geriatric Society. Provides a complete online book called
"Eldercare at Home" that focuses on the health problems of seniors.
http://www.acsu.buffalo.edu/~drstall/hndbk0.html
Caregiver's Handbook. A complete online handbook for caregivers
written by the San Diego County Mental Health Services. Provides full
instructions for caregiving at home, including physical care and emotional and
legal issues.
The Eldercare Locator allows users to search for
eldercare resources in any state.
http://www.eldercareadvocates.com/
The Eldercare Resource Center provides a variety of articles on
all aspects of caregiving.
ElderWeb. An excellent site for news updates
on legislative, health, legal and consumer protection issues.
Family Caregiver Alliance provides updates on caregiver and
senior news, statistics, and public policy. Provides factsheets on health and
aging issues.
Insurance and Government Benefit
Program Sites
Official website
of the Administration on Aging. This U.S. government site describes
programs and services for seniors that are funded by the Older Americans Act.
Go to the "quick index" page for a listing of all programs and
topics.
http://www.benefitscheckup.org/
Benefits
Checkup.com. A site
that allows a senior to enter personal information and receive a list of community
services and benefits that he or she is eligible for. Includes State of
Connecticut programs.
FirstGov
for Seniors is a
user friendly site that compiles health, consumer protection and legislative information
from other government sites. Much of the information is health focused.
Medicare. The official US Government site for
people with Medicare. Provides information about Medicare benefits, nursing
home comparisons, Medigap insurance, prescription drug assistance and more.
http://www.infoline.org/Elders/Default.asp
INFO
LINE of Connecticut
provides information about state financial assistance programs, housing, home
car and legal issue
http://www.medicareadvocacy.org/
Center
for Medicare Advocacy. Helps seniors and people with disabilities understand Medicare benefits
and obtain needed services. Extensive information on Medicare rights.
http://www.govbenefits.gov/GovBenefits/jsp/GovBenefits.jsp
GovBenefits provides brief information about
social security programs and online forms and applications.
http://www.ctelderlyservices.state.ct.us/
State of CT Dept of Social Services, Elderly Services
Division provides information about state entitlement and benefit
programs for seniors.
http://www.opm.state.ct.us/pdpd4/ltc/home.htm
CT
Partnership for Long Term Care provides information about purchasing long term care insurance.
Lists plans and describes how the Partnership can provide long term care insurance
savings.
Social
Security Online provides information on all social security
programs.
Ct Elderlaw.com
. A site sponsored by
Connecticut Legal Services, Inc. Offers
articles on nursing homes, patient rights, wills, funeral arrangements, health
care and where to get legal help. Provides extensive information about Medicare
and Medicaid.
National Academy of Elder Law Attorneys. The
consumer section contains articles on how to select an elder law attorney. The
site allows users to search for the names of elder law attorneys in all states.
http://www.ec-online.net/legalchannel.htm
Eldercare Online Legal and Financial Channel provides
articles on elderlaw, financial matters, taxes, estate planning and more.
NoLo Law
for All Retirement and Eldercare section provides articles on financial matters, estate
planning, advance directives, etc.
http://www.aarp.org/legalsolutions/
AARP
Legal Solutions
provides articles on legal matters and practical tools such as a worksheet for
your will.
http://www.abanet.org/legalservices/public.html
The American Bar Association consumer's guide to help on the internet
provides articles on working with lawyers.
